Ginnie Horst Burkholder shares from the heart about caring for a spouse who is slowly slipping away to Lewy body dementia (LBD). Burkholder’s memoir reveals how she handles the constant challenges through humor, love, commitment, and faith. At the same time, she does not gloss over the loss, pain, and loneliness on this emotional roller coaster ride that invaded her marriage and family following her husband’s diagnosis.
The book is about the gritty and glorious substances of life—how illness and health, faith and doubt, grief and acceptance all flow together in the river of change. It leads each of us to a greater awareness of our own life experiences.
Study questions are included. They are not only a tool for understanding dementia or the role of caregivers but can bring greater self-awareness to every person’s life experience.
LBD is not a rare disease. It affects an estimated 1.3 million individuals and their families in the United States. It affected the author Ginnie Horst Burkholder's family before the age of 50. Learn more from the Lewy Body Dementia Association at www.lbda.org. Read more of Ginnie's writing and other Essays on LBD Caregiving by clicking here.
A great companion resource to Relentless Goodbye is the book Loving Someone Who Has Dementia: How to Find Hope while Coping with Stress and Grief by Pauline Boss, PhD. Click here for more information.
Ginnie Horst Burkholder lives in Canton, Ohio and has previously published stories, poems, and essays. She has been her husband Nelson's primary caregiver since 1997 when he was diagnosed with Lewy body dementia. She visits Nelson frequently since his admission to a nursing home in 2010 and continues to be very involved in his care.